It Long Ago Became ‘Faithbook’ … But, Our “Warrior Princess” Is No Longer Here To Enjoy The Attention of Thousands
UPDATE – 10:36 p.m. EST 9-12-2001
At 5:40 p.m. PST, Faith Fulmer transitioned from this plane and left behind her parents, family and – by that time -0 25,798 of the closest friends anyone could hope to find in this world. We can thank the creation of Facebook for that.
Louie and Jolayne Fulmer, and grandparents Annie and Allan King and close members of the family were there at bedside at the family’s home to say goodby and to honor the fighting spirit of a little one who struggled valiantly…but against a rare form of childhood cancer that proved implacable. Death took only the body; the soul and Faith’s love remained in all its glory.
More details as they come, but it appears that there will be a large public memorial at Table Rock Fellowship, followed by interment at the Eagle Point Veteran’s Cemetery.
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LET’S FAITH IT! - That eight-year-old Faith Fulmer in a small town in southern Oregon, whom so many of you are beginning to know so well, has not been blessed with improved health in her fight against a rare form of childhood cancer. She is no longer undergoing radiation treatments, but is now at home in a hospice environment surrounded by her family and friends.
She needs all the positive love, energy and prayers possible to be directed her way, and as many well-wishers to see her through her all-too-short passage in life. As no one could possibly describe this moment better than her mother, Jolayne Fulmer, I am directing you to her latest update: http://on.fb.me/pKno94. I don’t know how she does it, but Jolayne writes hope into every line.
When this blog was created (it seems) ages ago, a seven-year-old Warrior Princess was recently diagnosed with a severe bone cancer of the upper left arm. Friends and family immediately created a FB page last year, where her followers grew from a few, to then over 1,000, and on August 1 of this year reached 4,216. (This jumped to 7,806 by the evening of 8/3) People, from all over the world and far from her home in southern Oregon, now follow her trials, share her triumphs, suffer her defeats, smile at her smiles and rage with her against the cancer and its attack on her frail, tiny frame.
I have no doubt that her FB followers and their energy and prayers have been essential in keeping this young lady alive and encouraged. In that light, I wish to provide a new goal. Milestones are so important. It is the wish and hope of her family that her Facebook followers can reach 20,000 – and soon. Attaining that magical number will not likely serve as the tipping point being prayed for daily – a miracle cure – but it is a number that delights Faith.
Please read about her courage, and then lend her some of your own. I have left my last year’s entry intact (below) so that you can get an idea of the distance she has traveled for one so little. I don’t think she could have made it this far without the loving companionship she has attracted.
So, please “friend” Faith and past this request on to your own friends and family to do the same. And, if you can put further time aside to do so – send a postcard to her c/o PO Box 5473, Central Point, OR 97502. It will be prized.
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This unfortunate but courageous seven-year-old afflicted with bone cancer of the upper left arm – deserves more and more supporters on her Facebook page.
Her left arm has been salvaged from amputation, but not every reading has been totally hopeful. So, please visit and include yourself amongst world-wide visitors who are cheering for her and her recovery.
Now, here’s a very early update for her present and future fans…
Faith is back home in southern Oregon after undergoing more chemotherapy and is now wearing a brace to keep her arm below a 90-degree angle so that she doesn’t end up with a “frozen elbow.” This requires massaging the 10-inch scar to keep the scar tissue from solidifying. Not fun for this little girl today…but will be for the capably-functioning gal of tomorrow.
HISTORY: To those new to this blog, it appeared that Faith’s left arm was destined to be removed earlier this year - until a few miracles set in.
First, thanks to “horsing around” she complained about her arm being “popped.” A trip to the doc and radiologist in April showed a fracture in the upper arm/shoulder near the growth plate. Within three weeks this arm was three times the size of the other…and the xrays showed a tumor. By the first week in May she was undergoing chemotherapy – a ten-week program.
Before long…when the chemo showed no effect…the doctor conversations turned to radical surgery…and the need to remove the left arm at the shoulder. As her mother put it, “…when I heard the actual words spoken out loud, was that my stomach lurched. Almost immediately, that feeling was replaced with the thought that I’d rather have a beautiful, precocious, smart, funny, loving, happy little red-head with only one arm, than none at all.”
A date for surgery was set.
On a chance recommendation, Faith’s parents were referred to Dr. Ernest Conrad of Seattle Children’s Hospital. They drove Faith and her records and X-rays to a 5:00 meeting which lasted unti 8:00 p.m., and the Doctor said,
“We will operate tomorrow.”
That took place on June 9 and the arm was salvaged after an almost three-pound tumor was removed. Dr. Conrad’s people then teamed with Dr. Linda Stork’s unit at the Doernbecher Children’s Hospital in Portland to begin a specific chemotheraphy program.
Meanwhile, in the background, “Faith’s Friends” have organized to provide financial and emotional support. When this this blog debuted on June 5, there were just around 300 “Faithbook” friends – now that number is 1,553 and climbing.
If 1,000 supporters is powerful – can you imagine 2,000?
Faith’s FB page, “Faith’s Friends,” can be found at: http://bit.ly/djOulS. Her parents, Louis (a southern Oregon policeman) and wife, JoLayne, live in Central Point, OR. Many, many driving miles from Portland and Seattle.
I am inviting you to consider becoming “Fired Up for Faith” and joining others on FB for prayer and support – both emotionally and financially. every $5 for gas, or $2 for a meal, can make a difference for her parents.
This is the first time I have “gone personal” in my blogs…but couldn’t keep something as important as this to myself.
Here’s to all parents/mothers/fathers/brothers/sisters/family who have similar trials before and behind them.
I know that Faith and her family will be drawing on that wellspring of love and prayer.
Finally, for those unaware of Osteosarcoma, it is the eighth most common form of childhood cancer – or about 2.5% of all malignancies in pediatric patients. Rarely does it occur in someone as young as Faith – mostly striking teenagers.
Statistically, Faith is one of perhaps 50 children annually who will suffer this disease. Unkindly, Faith became one of those statistics.
May 30, 2010 | Posted by Jerry
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Thank you so much Jerry for this. I am Faith’s Grandma and when we found out (on her daddy’s 40th birthday) that our precious little angel had bone cancer we were just devastated and have been reeling every since.
But this little gal is spunky between her vomiting from the chemo. When her hair started falling out at home, she chased her 19 year old sister around the house with a ball of it. If you go on Faith’s friends on facebook you will see nothing but smiles from this little trooper.
She was more concerned that her daddy didn’t get a birthday cake on his birthday, so she called me from Portland and asked me to bake him a spice cake with frosting with sprinkles.
The kids have to drive 300 miles (one way) to the hospital. The expense is going to be astronomical with gas, food, lodging and medical expenses. A wonderful organization in a town near by heard about Faith and has adopted her and will be raising money for her. They are a non-profit organization and any donations are tax deductible. http://www.handprintsofhope.org.
Please check out her site and see what a sweet little girl she is. Thank you for any help you can do. We really need prayers too! Prayers are just as important as money. Sometimes more!
Hi Annie – heard about Faith from Jerry and sent a small donation. I am sending up huge prayers for her recovery though. I have a seven-year old granddaughter as well, so I can imagine how devastating this must be.
My prayers have just been sent heavenward for Faith – God has a reason and purpose for this all – may the entire family find peace – David Kalstrom
I am a friend of Faith Friends on Facebook.
I have my “Fired up for Faith” bracelet on.
We are praying like crazy for her and the fam,
and we will continue to pray!
Hey Annie, don’t worry, God said that with faith you can move mountains, in fact he said also that when asking for something believe that you will be answered and you will be answered.
Annie, don’t worry just believe
Annie, don’t worry you are not alone
One more thing, keep smiling because Faith will get well
Praying…
Thank you so much Fadi. I read this after we got the news that there maybe cancer in the bone above the elbow. Was pretty devastated but was lifted when I read your comment. I do believe that our prayers will be answered. Thank you
Thank you for sharing Faith’s story! I know Faith’s mom JoLayne from high school in Medford and know we have many friends who have joined “Faith’s Friends” FaceBook page in support of Faith and her family. Please consider adding her as a friend and just sharing positive messages with them, or donating to HandPrints of Hope if possible to help offset the enormous costs the the family is going to face throughout Faith’s treatment! http://www.handprintsofhope.org
Thank you again!
Just to let you all know, Faith and her mommy and daddy will be on KDRV TV tonight, July 5, for an interview about living with cancer. Full story at 6:00, spot story at 5:00.
This is Faith’a Grammy, Jan Pearson. We all thank everyone for their vigilance, their praryers, emotional and financial support for our family. Without you, we would not be able to cope during this time of concern for Faith’s safety.
Thank you, Dr. Conrad, for your timely operation to save Faith’s lower arm. Words aren’t enough to express our gratitude.
Last night I went to a candlelight vigil for Faith and a little boy named Ethan Jostad.
These kids didn’t even know each other until last year when they met at Relay for Life here in Medford Oregon. Ethan had been diagnosed with his cancer in 2008, and of course, Faith last year in April.
Then this year, both were at Relay again, but as friends going through a battle. Faith had just had lung surgery as the cancer had metastized to her left and right lungs. Ethan had been clear of cancer at his last check up in April. But, the day after Relay, Ethan started having pains in his side and was rushed back to NYC to be checked out.
It wasn’t good, the cancer, very aggressive, had been found throughout his little body. A few weeks ago, the doctors sent him home with no medical hope.
A week ago, Faith was flown to Doernbecher’s hospital in Portland Oregon because she couldn’t breathe. Her cancer had returned to her left lung and the tumor has been pressing on her trachia. She also has a soft tissue cancer in her jaw. The only thing the doctors can do now is to radiate the area of the jaw to relieve her pain. They also removed more fluid around her lung.
While she was up there, Ethan was sent there too, and is just across the hall from Faith. Faith’s mommy calls that a “sick irony”.
Faith will be coming back to her home for hospice care on Friday, but as my sister said, “Don’t give up 5 minutes before the miracle”, so we ask for more prayer for these special kids, Warrior Princess Faith and Warrior Prince Ethan.
I am thanking you all now in advance, because who couldn’t put them in your thoughts and prayers now? I couldn’t.
Faith’s aunt, Nancy
My prayers go out to this little girl and her family